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Old 09-29-2009, 05:14 PM   #1
shilala
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Default Disease of the Month Club

I saw a new neurosurgeon yesterday.
She actually looked at all my mri's and reports and all that good stuff. Did two hours worth of tests, tortured me really well, and diagnosed me with Dopamine Responsive Dystonia. It's kind of like Parkinson's, but it's not. It responds very well to drugs.
After coming home and researching it, It answers pretty much all the problems I've had for the last five or six years, leading up to when I broke my back.
She started me on some cinnabun dope (The generic is Levodopa, I can't remember what it's really called) and I can't barely find my ass with both hands. It'll take a few days to a week for it to mellow out, but it already seems to be helping. This morning I could feel hot and cold with my left fingers, and my hands uncurled and my arms feel like noodles.

Anyways...
The reason I mention it is that I have a bunch of pm's backed up and I pretty much can't type, think, or know which way is up.
I'll get all caught up with everyone in few days, hopefully.
I'm going to put the laptop away and look at the ceiling for as long as it takes.
Lisa is here taking care of me, and although I'm pretty screwed up, I feel a million times better than I have, and things are looking up.
If you guys would look out for me and let guys know I'm laid up when they mention I haven't gotten back to them, I'd really appreciate it.
If this new round of bullshit works out, I'll be able to get back to doing some things I enjoy doing, and be able to get back to being a general nuisance around here.
Thanks!!!
Scott
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Old 09-29-2009, 05:17 PM   #2
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Default Re: Disease of the Month Club

Get Well Scott. Glad things seem to be working.
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Old 09-29-2009, 05:18 PM   #3
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Default Re: Disease of the Month Club

If you need more dopamine released into your system, start using coke. Joking aside, I hope all works out Scott.
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Old 09-29-2009, 05:19 PM   #4
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Default Re: Disease of the Month Club

Keep your head up brother!!
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Old 09-29-2009, 05:22 PM   #5
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Default Re: Disease of the Month Club

Hang in there, Scott, and feel better.


Oh wait - seems you're feeling all too well already. Be sure to save some for the rest of us!
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Old 09-29-2009, 05:24 PM   #6
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Default Re: Disease of the Month Club

Hopefully they found the root of the problem. Get and be well Scott.
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Old 09-29-2009, 05:25 PM   #7
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Default Re: Disease of the Month Club

Prayers for it working for ya brother.
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Old 09-29-2009, 05:27 PM   #8
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Default Re: Disease of the Month Club

Best of luck with your health moving forward, prayers sent for brighter days ahead.
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Old 09-29-2009, 05:29 PM   #9
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Default Re: Disease of the Month Club

Hope this means you can live a more comfortable life Good luck Scott and my prayers are with you.
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Old 09-29-2009, 05:36 PM   #10
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Default Re: Disease of the Month Club

Glad they figured out what it is Scott - sorry it turned out to actually be something, though it sounds like it's better dealing with something known. We'll look forward to you getting back to normal, though we might not recognize you.
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Old 09-29-2009, 05:40 PM   #11
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Default Re: Disease of the Month Club

Thoughts and prayers with you brother on a quick bounce back.

I can't say that I've been where you are right now, but I can relate on some level. Hang in there.
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Old 09-29-2009, 05:42 PM   #12
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Default Re: Disease of the Month Club

Hope the treatment works Scott. I will keep you in my thoughts.
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Old 09-29-2009, 05:46 PM   #13
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Default Re: Disease of the Month Club

get well soon!!
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Old 09-29-2009, 05:46 PM   #14
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Default Re: Disease of the Month Club

prayers sent for ya, get better
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Old 09-29-2009, 05:47 PM   #15
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Default Re: Disease of the Month Club

hope you're up and about soon
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Old 09-29-2009, 05:52 PM   #16
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Default Re: Disease of the Month Club

Hope you feel better soon Scott. Prayers sent.
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Old 09-29-2009, 05:52 PM   #17
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Default Re: Disease of the Month Club

A correct diagnosis is the first, best step in getting back to "normal."
Here's hoping this one is the one that does the trick, Scott.

Prayers for you, brother.
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Old 09-29-2009, 05:52 PM   #18
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Default Re: Disease of the Month Club

Good Luck!!!
Finding the cause is half the battle.
At least they know what you have and can treat it.
Good wishes for you.
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Old 09-29-2009, 06:49 PM   #19
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Default Re: Disease of the Month Club

Sounds like you may have the answers you need, Scott...I will send some good thoughts your way.
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Old 09-29-2009, 06:52 PM   #20
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Default Re: Disease of the Month Club

Good luck Scott
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