Good news at the doctor today.

shilala · 01-10-2011, 11:27 AM

I went and saw my neurologist today, and got some good news for a change.
I have this ridiculous disease called Isaac's Syndrome, most of you guys already know. It's gotten really bad in the last couple years.
The doc added a new drug therapy back in October, and I've gone into remission aside from my monthly bad peaks that have always happened. Even those are far less severe than they were.
I've responded so well that I'm now going to stop taking one of my meds gradually over the next three months. The doc says that stopping those meds should allow the new meds to work even better, or at least that's his hope. There's no assurance at all about what will happen because he's got no frame of reference. I'm the first tard who's ever been treated with these meds for my problem. It was something I suggested after lots of reading, and being as I hadn't responded to any treatments for years, he figured anything was worth a shot. Now they're all excited. So much so that there were three people in the office for my visit, plus I didn't catch hell for being late.

I also passed my tests this time and now I don't have to get all my plasma swapped out. I never looked into what exactly happened with the plasma exchange therapy, so I'm not sure what I weaseled out of, but I couldn't imagine it being all that pleasant. Had I looked it up, I'd have been a nervous wreck.
Now I just get more tests (only one page full this time) and I go back in July and we gauge the progress. Lisa says I'm worlds better than last year at this time, and she's the one who takes care of me, so I'm sure she's right.
All that was just to say Thank You to all of you for all your prayers and support along the way, and to Thank God. His Grace and Glory are boundless, ceaseless, and ever amazing. If not for His Love for me, I'd have pulled the plug long, long ago.

kaisersozei · 01-10-2011, 11:29 AM

Excellent news, Scott

MedicCook · 01-10-2011, 11:39 AM

Scott.

Ogre · 01-10-2011, 11:30 AM

Congrats brother. Its a nice change to hear some good news these days.

McSmokey · 01-10-2011, 11:31 AM

Great News Scott!! Hope your improvement continues

replicant_argent · 01-10-2011, 11:34 AM

Outstanding, Scott!

Glad to hear that you have made progress out of that trench you were in!

markem · 01-10-2011, 11:36 AM

Rocking good news, Scott!

Blindjimme · 01-10-2011, 11:38 AM

Great to hear my friend!

01-10-2011, 11:38 AM

icehog3 · 01-10-2011, 11:43 AM

So glad you got some good news for a change, Scott...you deserve some.

elderboy02 · 01-10-2011, 11:44 AM

Great news!

bigliver · 01-10-2011, 11:52 AM

Happy for you brother. Here's to more successes on the road back.

01-10-2011, 11:53 AM

Awesome news, Scott!

pektel · 01-10-2011, 11:54 AM

Great news, Scott!

jesseboston81 · 01-10-2011, 11:56 AM

This is excellent news--congrats! It was very inspiring to read about your improvement!

awsmith4 · 01-10-2011, 12:02 PM

Glad to hear that things are looking up Scott, continued prayers for you brother!

IBQTEE1 · 01-10-2011, 02:22 PM

Great news Scott.

Steve · 01-10-2011, 02:36 PM

Good Health...New Wife...Great Life!

eber · 01-10-2011, 02:58 PM

That certainly is great news Scott, best of luck with the treatment into the future.

G G · 01-10-2011, 03:00 PM

It's looking up for you brother and I am glad to hear it.

01-10-2011, 11:27 AM	#1
shilala Dear Lord, Thank You. Join Date: Oct 2008 First Name: Scott Posts: 13,721 Trading: (252)	Good news at the doctor today. I went and saw my neurologist today, and got some good news for a change. I have this ridiculous disease called Isaac's Syndrome, most of you guys already know. It's gotten really bad in the last couple years. The doc added a new drug therapy back in October, and I've gone into remission aside from my monthly bad peaks that have always happened. Even those are far less severe than they were. I've responded so well that I'm now going to stop taking one of my meds gradually over the next three months. The doc says that stopping those meds should allow the new meds to work even better, or at least that's his hope. There's no assurance at all about what will happen because he's got no frame of reference. I'm the first tard who's ever been treated with these meds for my problem. It was something I suggested after lots of reading, and being as I hadn't responded to any treatments for years, he figured anything was worth a shot. Now they're all excited. So much so that there were three people in the office for my visit, plus I didn't catch hell for being late. I also passed my tests this time and now I don't have to get all my plasma swapped out. I never looked into what exactly happened with the plasma exchange therapy, so I'm not sure what I weaseled out of, but I couldn't imagine it being all that pleasant. Had I looked it up, I'd have been a nervous wreck. Now I just get more tests (only one page full this time) and I go back in July and we gauge the progress. Lisa says I'm worlds better than last year at this time, and she's the one who takes care of me, so I'm sure she's right. All that was just to say Thank You to all of you for all your prayers and support along the way, and to Thank God. His Grace and Glory are boundless, ceaseless, and ever amazing. If not for His Love for me, I'd have pulled the plug long, long ago. __________________

01-10-2011, 11:29 AM	#2
kaisersozei The Homebrew Hammer Join Date: Oct 2008 First Name: Gerard Location: Midlothian, VA Posts: 3,183 Trading: (40)	Re: Good news at the doctor today. Excellent news, Scott __________________

01-10-2011, 11:39 AM	#3
MedicCook Mila smoked my cigar Join Date: Jan 2009 First Name: Ryan Location: Schaghticoke, NY Posts: 10,946 Trading: (7)	Re: Good news at the doctor today. Scott. __________________ 27 World Series Championship's "If your wife doesn't like the aroma of your cigar, change your wife.", Zino Davidoff

01-10-2011, 11:30 AM	#4
Ogre **CENSORED** Join Date: Apr 2010 First Name: Larry Location: Central Florida Posts: 12,068 Trading: (46)	Re: Good news at the doctor today. Congrats brother. Its a nice change to hear some good news these days. __________________

01-10-2011, 11:31 AM	#5
McSmokey Feeling at Home Join Date: Aug 2009 First Name: Justin Location: Tuscaloosa, AL Posts: 948 Trading: (30)	Re: Good news at the doctor today. Great News Scott!! Hope your improvement continues __________________ "Although personally I am quite content with existing explosives, I feel we must not stand in the path of improvement." Winston Churchill

01-10-2011, 11:34 AM	#6
replicant_argent Gravy Boat Winnah. Join Date: Oct 2008 First Name: Pete Location: my attorney has advised against giving this information to insane people Posts: 5,326 Trading: (22)	Re: Good news at the doctor today. Outstanding, Scott! Glad to hear that you have made progress out of that trench you were in! __________________ www.stogietorch.com Some days call for a stiff Pomade.

01-10-2011, 11:36 AM	#7
markem Bunion Join Date: Oct 2008 First Name: Mark Location: Second Star on the Right Posts: 22,625 Trading: (47)	Re: Good news at the doctor today. Rocking good news, Scott! __________________ I refuse to belong to any organization that would have me as a member. ~ Groucho Marx

01-10-2011, 11:38 AM	#8
Blindjimme Judgement Impaired Join Date: Apr 2009 First Name: JB Location: North OC, CA Posts: 790 Trading: (14)	Re: Good news at the doctor today. Great to hear my friend!

01-10-2011, 11:38 AM	#9
Darrell Guest Posts: n/a	Re: Good news at the doctor today.

01-10-2011, 11:43 AM	#10
icehog3 Admiral Douchebag Join Date: Oct 2008 First Name: Tom Location: Clermont, Kentucky Posts: 71,441 Trading: (60)	Re: Good news at the doctor today. So glad you got some good news for a change, Scott...you deserve some. __________________ Thanks Dave, Julian, James, Kelly, Peter, Gerry, Dave, Mo, Frank, Týr and Mr. Mark!

01-10-2011, 11:44 AM	#11
elderboy02 Lets Go Buckeyes! Join Date: Oct 2008 First Name: Dan Location: Cincinnati, OH Posts: 12,509 Trading: (133)	Re: Good news at the doctor today. Great news!

01-10-2011, 11:52 AM	#12
bigliver Cigarmurai Join Date: Dec 2008 First Name: Jason Location: Oki Posts: 404 Trading: (9)	Re: Good news at the doctor today. Happy for you brother. Here's to more successes on the road back. __________________ Build a man a fire, keep him warm for a night. Set a man on fire, keep him warm for the rest of his life.

01-10-2011, 11:53 AM	#13
Wanger Guest Posts: n/a	Re: Good news at the doctor today. Awesome news, Scott!

01-10-2011, 11:54 AM	#14
pektel I'm nuts for the place Join Date: Jul 2010 First Name: Peter Location: Grand Rapids, MN Posts: 4,320 Trading: (28)	Re: Good news at the doctor today. Great news, Scott! __________________ The problem is not the problem. The problem is your ATTITUDE about the problem.

01-10-2011, 11:56 AM	#15
jesseboston81 CC Simple PIF Promoter Join Date: Dec 2010 First Name: Jesse Location: Londonderry, NH Posts: 2,231 Trading: (41)	Re: Good news at the doctor today. This is excellent news--congrats! It was very inspiring to read about your improvement! __________________ Come play in the CC Simple PIF!

01-10-2011, 12:02 PM	#16
awsmith4 Simple Pleasures - 2oL Join Date: Oct 2008 First Name: Albert Location: Marietta, Georgia Posts: 4,602 Trading: (111)	Re: Good news at the doctor today. Glad to hear that things are looking up Scott, continued prayers for you brother! __________________ Its THIS easy to support our troops

01-10-2011, 02:22 PM	#17
IBQTEE1 Crazy K Join Date: Oct 2008 First Name: Kristin Location: Here and there Posts: 2,563 Trading: (6)	Re: Good news at the doctor today. Great news Scott. __________________ It's a Good Day to Smoke a Cigar!!!

01-10-2011, 02:36 PM	#18
Steve Dad Jokester Supreme Join Date: Oct 2008 First Name: Steve Location: 17 R 435648 3354895 Posts: 7,715 Trading: (6)	Re: Good news at the doctor today. Good Health...New Wife...Great Life! __________________ ...So don't sit upon the shoreline and say you're satisfied, Choose to chance the rapids and dare to dance that tide

01-10-2011, 02:58 PM	#19
eber Have My Own Room Join Date: Jan 2009 First Name: Erik Posts: 1,229 Trading: (7)	Re: Good news at the doctor today. That certainly is great news Scott, best of luck with the treatment into the future.

01-10-2011, 03:00 PM	#20
G G BR549 Join Date: Oct 2008 First Name: Greg Location: Taylor, FL. Posts: 12,730 Trading: (10)	Re: Good news at the doctor today. It's looking up for you brother and I am glad to hear it.